© 2019 Sandy Ernest Allen

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RESOURCES

 

Since AKOMP published, people write me who are soliciting my help. Many have a friend or relative in crisis; others are searching to help themselves. People also come to see me in person. Professionals, too, including ones who are fed up with the status quo and want to inspire change for the better where they work and in their circles. I do try to respond to such queries, however imperfectly and inexpertly. That said, I can be slow to get to all email.

 

Fortunately a great many organizations and books and other media already exist that may be of interest those in search of better information.

Websites

Mad in America: https://www.madinamerica.com/

The Icarus Project: http://theicarusproject.net

Hearing Voices Network USA: http://www.hearingvoicesusa.org/

Intervoice (International Hearing Voices Network): http://www.intervoiceonline.org

Western Massachusetts Recovery Learning Community: http://www.westernmassrlc.org/

Peer Respites: http://www.peerrespite.net/

Warm Lines: http://warmline.org/

Alternatives to Suicide: http://www.westernmassrlc.org/alternatives-to-suicide

MindFreedom: http://www.mindfreedom.org

National Empowerment Center: http://www.power2u.org/

National Association for Rights Protection and Advocacy: http://www.narpa.org/links

The Law Project for Psychiatric Rights: http://psychrights.org/

The International Society for Psychological and Social Approaches to Psychosis: http://www.isps.org/

International Society for Ethical Psychology and Psychiatry: http://psychintegrity.org/

If you’re someone who hears voices (or sees visions or has other 'unusual and extreme experiences'), consider taking the Our Voices Raised survey: https://www.ourvoicesraised.org/

Podcasts

Madness Radio: http://www.madnessradio.net

Mad in America podcast: https://www.madinamerica.com/mia-radio-landing/mia-podcast/

Where Should We Begin? with Esther Perel https://www.estherperel.com/podcast

How To Survive the End of the Worldhttps://www.endoftheworldshow.org/​

Videos

Crazywise documentary https://crazywisefilm.com/

Healing Voices documentary: http://healingvoicesmovie.com/

RLC Film Productions: http://www.westernmassrlc.org/rlc-film-productions

Documentaries by Daniel Mackler: http://wildtruth.net/

People Say I’m Crazy: https://www.youtube.com/watch?v=VdzHl65XPYc

Psychiatric Survivors Speak Out: https://www.youtube.com/watch?v=cKDuKFuDDq8

Eleanor Longden TED Talk: https://www.ted.com/talks/eleanor_longden_the_voices_in_my_head

Books​

I’ve read a lot of books about madness/mental illness; here is a piece I wrote for Electric Literature recommending some titles in particular.

 

Here's a brief essay I wrote for Powell's about all the books "about schizophrenia" I haven't read.

 

That being said, here are some recommended books. Figure if a given book is not here, chances are I have heard of it/read it and I'm not recommending it. 

Novels

I Never Promised You a Rose Garden by Joanne Greenberg

Freshwater by Akwaeke Emezi

Memoirs

On Our Own: Patient-Controlled Alternatives to the Mental Health System by Judi Chamberlin

Sick by Porochista Khakpour

The Loony-Bin Trip by Kate Millett

The Collected Schizophrenias by Esmé Weijun Wang

 

& Other Nonfiction, by topic 

Many of these books cover many topics; I've sorted them just to try to be of use to those interested in finding information about something specific. 

Care Farming / Green Care

 

Farming for Health: Green-Care Farming Across Europe and the United States of America edited by Jan Hassink and Majken van Dijk

 

Electroshock / ECT

The Electroshock Quotionary compiled by Leonard Roy Frank (download for free): https://mindfreedom.org/kb/view-d205/

Doctors of Deception: What They Don’t Want You To Know about Shock Treatment by Linda Andre

Psychiatry and the Business of Madness: An Ethical and Epistemological Accounting by Dr. Bonnie Burstow

Electroshock: Its Brain-Disabling Effects by Dr. Peter Breggin

The History of Shock Treatment edited by Leonard Roy Frank 

Genetics & Mental Illness

 

The Gene: An Intimate History by Dr. Siddhartha Mukherjee

Hearing Voices Movement

 

The Voices Within: The History and Science of How We Talk to Ourselves by Charles Fernyhough

Living with Voices: 50 Stories of Recovery by Dr. Marius Romme, Dr. Sandra Escher, Jacqui Dillon, Dr. Dirk Corstens, Prof. Mervyn Morris, eds.

Young People Hearing Voices by Dr. Sandra Escher and Dr. Marius Romme

Mad Pride / Psychiatric Survivor Movement / Recovery Movement / Alternatives / Radical Mental Health

 

On Our Own: Patient-Controlled Alternatives to the Mental Health System by Judi Chamberlin

Talking Back to Psychiatry by Dr. Linda J. Morrison (sociological study of the movement)

Outside Mental Health: Voices and Visions of Madness by Will Hall

Alternatives Beyond Psychiatry by Dr. Peter Stastny and Peter Lehmann, eds.

The Spiritual Gift of Madness: The Failure of Psychiatry and the Rise of the Mad Pride Movement by Dr. Seth Farber

Rethinking Madness: Towards a Paradigm Shift in our Understanding and Treatment of Psychosis by Dr. Paris Williams

Moving Beyond Prozac, DSM, and the New Psychiatry: The Birth of Postpsychiatry by Dr. Bradley Lewis

Agnes’s Jacket: A Psychologist's Search for the Meanings of Madness by Dr. Gail Hornstein

Neurodiversity

 

NeuroTribes: The Legacy of Autism and the Future of Neurodiversity by Steve Silberman

 

Psychiatry & Psychiatric Drugs

Harm Reduction Guide to Coming off of Psychiatric Drugs (available for free online)

Mad in America: Bad Science, Bad Medicine, and the Enduring Mistreatment of the Mentally Ill by Robert Whitaker

Anatomy of an Epidemic: Magic Bullets, Psychiatric Drugs, and the Astonishing Rise of Mental Illness in America by Robert Whitaker

Psychiatry Under the Influence: Institutional Corruption, Social Injury, and Prescriptions for Reform by Robert Whitaker and Dr. Lisa Cosgrove

The Bitterest Pills: The Troubling Story of Antipsychotic Drugs by Dr. Joanna Moncrieff

The Myth of the Chemical Cure: A Critique of Psychiatric Drug Treatment by Dr. Joanna Moncrieff

Medication Madness: A Psychiatrist Exposes the Dangers of Mood-Altering Medications by Dr. Peter Breggin

Psychiatry and the Business of Madness: An Ethical and Epistemological Accounting by Dr. Bonnie Burstow

Toxic Psychiatry: Why Therapy, Empathy, and Love Must Replace the Drugs, Electroshock, and Biochemical Theories of the "New Psychiatry" by Dr. Peter Breggin

The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Dr. Bessel van der Kolk

Crazy Like Us: The Globalization of the American Psyche by Ethan Watters

The Spiritual Gift of Madness: The Failure of Psychiatry and the Rise of the Mad Pride Movement by Dr. Seth Farber

To Redeem One Person is to Redeem the World: The Life of Frieda Fromm-Reichmann by Dr. Gail Hornstein

Schizophrenia

(also see Hearing Voices Movement)

I Never Promised You a Rose Garden by Joanne Greenberg

The Gene: An Intimate History by Dr. Siddhartha Mukherjee

The Protest Psychosis: How Schizophrenia became a Black Disease by Dr. Jonathan M. Metzl

The Collected Schizophrenias by Esmé Weijun Wang

Self-Care

 

Mindful Occupation: Rising Up without Burning Out (available for free online)

Do What You Want: A Zine about Mental Wellbeing by Ruby Tandoh and Leah Pritchard

Peer Respites

 

Peer Respite Handbook: A Guide to Understanding, Building and Supporting Peer Respites by Sera Davidow

Soteria: Through Madness to Deliverance by Deborah C. Fort, Dr. Loren Mosher, and Voyce Hendrix

 

Trauma

 

The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Dr. Bessel van der Kolk